Watch Respect: The Joy of Aides, a wonderful 20-minute documentary by Eva Sweeney, a woman with CP, about how to hire and manage aides and what it’s like when a direct care worker and a client work well together.
The following is an edited excerpt from a journal I kept in October 2004 about life as a home care worker in Augusta, Maine.
Two days ago, I pulled the ligament under my kneecap at a client’s home, catching my foot on a plastic rug. Then my car started to make “dentist drill” noises and my mechanics told me I needed to replace the pulleys on the alternator. I squeezed another 12 miles onto the odometer before I felt a change in the power steering, letting me know the alternator wasn’t doing its job. Welcome to the home care worker’s biggest nightmare: Lack of wheels!
I reflected on my need for transportation as I took a taxi to work yesterday. Basically, my car is used for business transportation. “Drive to work, work to drive,” as a friend used to say. To save money, I do all my errands on my way home from an elder’s house. Of the thousands of miles on my old car, I have probably logged about a thousand traveling for pleasure, usually to see family and friends. The rest were all spent driving to and from my clients’ homes. Continue reading »
Direct care work, in one sense, made me feel like a rock star. When a stranger asked me what I did for a living, and I said, “I work in a facility for emotionally troubled teenagers,” the response was often: “Wow, that’s so great.” No other job I’ve ever done—and I’ve sampled dozens—has ever netted me such a consistent response.
And the job was great, for all the reasons these strangers guessed. It was important work that pulled my heart and soul and body into the huge effort required each day. It was clear as I started a shift at the residential center that I would be challenged and that I would have the chance to help young people in crisis.
I think part of the awed response to these direct care positions comes from the urge that everyone has to do meaningful work. Many people have jobs that don’t feel meaningful to them, and those people fantasize about leaving a position to make a difference. Most people respect a job where, at the end of the day, you can clearly point to a crisis you helped solve or a person in pain who you helped comfort.
It’s mysterious and tragic that the respect we have on a one-to-one basis for meaningful jobs doesn’t translate to respect for an industry or a whole category of employees: the group of direct care workers.
The lack of respect results in things like low wages and stressful working conditions.
Have you ever done a happy dance? Well I don’t dance, but I did a happy dance when I completed the enrollment process for health insurance through the new health care marketplace. It was frustrating at times, but the frustration was worth it because I finally have health insurance again!
I have had to deal with a lot of stress in the past in keeping my family insured through Badger Care, Wisconsin’s Medicaid program, as the children got older or the rules changed. I’ve also had my own struggles with maintaining health care coverage. For many years as a home care worker I qualified for Badger Care. Then I got a raise and was making $50 a month too much to qualify, so I had to switch to my employer’s insurance plan. That lasted for years, but I lost that insurance in November 2011 when the home care agency I work for stopped offering insurance because it was too expensive.
I went without health insurance for two and a half years after that. There were several times during that period when I should have seen a doctor but did not because I couldn’t afford it. Continue reading »
Posted by Jessica Brill Ortiz on May 18th, 2014 at 1:32 pm | Comments Off on Direct Care Worker Voices Ring Loud and Clear at Capitol Hill Briefing
“That was so compelling.” “How can I learn more?” “How powerful!”
That was some of the feedback I received from the people who approached me following a May 8 briefing on Capitol Hill. The Washington, D.C. briefing was hosted by OWL–The Voice of Midlife and Older Women, to observe the release of its annual Mother’s Day report. The focus of this year’s report is long-term care, services and supports (LTSS), including growing demand, challenges, and opportunities for improvement, and I had been asked to talk about how direct care workers fit into that picture. My co-panelists highlighted key considerations including how best to meet the needs of older adults and people with disabilities, the challenges facing family caregivers, financing, and the lack of a political will for change. I spoke about the critical role played by direct care workers and how best to strengthen and support the direct care workforce to meet the growing demand for high-quality care and support.
When I spoke, there were gasps from the audience at the size and anticipated growth of the workforce, the percentage of women in the profession, and the low wages and high rate of dependence on public assistance among direct care workers. We are so familiar with these facts and figures that we sometimes forget how shocking they are to people who are new to them, but reactions at the briefing proved that we were reaching new people, teaching them about the urgency and importance of direct care workforce issues, and inspiring them to take action. Continue reading »
Posted by Direct Care Alliance on May 16th, 2014 at 11:49 am | Comments Off on How to Improve Elder Care
This Wednesday, Direct Care Alliance, Eldercare Workforce Alliance and the National Consumer Voice for Quality Long-Term Care hosted an Older Americans Month tweetchat on how to support older adults’ independence, safety and health. Here are highlights from the chat, including links to moving testimonials, useful resources, and tips about how you can help.
Posted by Jessica Brill Ortiz on May 5th, 2014 at 1:58 pm | Comments Off on What Older Americans Really Need
Jessica Brill Ortiz
May is Older Americans Month, traditionally a time to recognize older adults’ contributions to the United States. But if we genuinely want to use this May to give back to the parents, grandparents and other elders who have done so much for us, we must turn our attention to the direct care workers who help millions of older adults live as healthily and independently as possible. We must stop shortchanging elders by turning our backs on the direct care workers they depend on.
Read the rest of my editorial in The Hill’s Congress blog.
Deborah Little is the chair of the Sociology department at Adelphi University. Her chapter in Caring on the Clock, a book on direct care work that is due out this fall from Rutgers, looks at DCA’s work to support and empower direct care worker advocates. She recently talked to DCA’s Elise Nakhnikian about what strategies are most effective and why.
Voices Institute students at work with an instructor (far left).
What got you interested in this topic?
I was hired by DCA to do an evaluation of the pilot senior CNA project that started three years ago. As part of that, Leonila [Vega] invited me to attend a national Voices Institute in Wisconsin, because five participants from the senior CNA project attended that year. At the Voices Institute, I got very interested in the organizing and empowerment work that DCA was doing. I took extensive field notes during the Voices Institute, and spent a lot of time speaking with participants in informal interviews. After that, I expanded my research to look at the DCA blog and the literature on organizing direct care workers.
What got me interested in this topic was a moment that I talk about at the beginning of the paper, where one of the workers at the Voices Institute was willing to give up a wage increase because she thought it would be difficult for her clients to afford the extra cost. I thought, how can this be? How can she not readily see the connection between the quality of her job and the quality of the care she is giving? And how can she be so willing to sacrifice her own needs and the needs of her family? Continue reading »
Posted by Dorothy Lee on May 5th, 2014 at 1:46 pm | Comments Off on Obamacare Gave Me Back My Medicaid Coverage
Dorothy Lee is a home health aide living in New York City who signed up for health insurance under the Affordable Care Act (ACA, also known as Obamacare), with the help of our Get Direct Care Workers Covered initiative.
I’ve been working for an agency here in New York for three years. Before that, I worked at a Ritz-Carlton in Florida. When I moved here I wanted to switch to working with the elderly. I like working with people, and when my grandmother was old I didn’t get to give her any attention. It feels good to be able to help other people’s grandparents.
When I worked at the hotel I had insurance through Aetna, but I started going without insurance soon after I started doing home health care. At first I had Medicaid through Health Plus, but they took it away because I was earning too much. They said I have to make less than $700 a month to get back on Medicaid. Continue reading »
Posted by Direct Care Alliance on May 5th, 2014 at 10:23 am | Comments Off on Direct Care Workers in the News
An Older Americans Month toolkit from Eldercare Workforce Alliance helps journalists and other stakeholders find publications, programs, and personal stories that focus on the health and safety of older Americans from EWA member organizations—including DCA.
“Home care services are among the most important work there is, and if we want it to be done well, dedicated home care workers should be compensated at a level that reflects their commitment and skills,” says an editorial in Maine’s Portland Press-Herald.
An excellent new publication from Center for Law and Social Policy explains a crucial but often overlooked part of compensation: direct care workers and other low-income workers are far less likely to get paid leave than higher-wage workers. The brief describes recent and pending laws and policies aimed at leveling the paid time off playing field.
Posted by Direct Care Alliance on May 1st, 2014 at 5:03 pm | Comments Off on DCA to Speak About Direct Care Workers at D.C. Briefing
Jessica Brill Ortiz
DCA National Advocacy Director Jessica Brill Ortiz will speak at a May 8 briefing on Capitol Hill in Washington, D.C.
OWL–The Voice of Midlife and Older Women is holding the briefing to observe the release of its annual Mother’s Day report, which focuses this year on long-term care, services and supports. Brill Ortiz will speak about the critical role played by direct care workers and how best to strengthen and support the workforce so workers can meet the growing demand for reliable, high-quality care and services.
The briefing will address a critical juncture at which America stands and how we can successfully navigate it: As our population ages and lives longer, we are experiencing a fast-growing need for long-term care, services and supports. Continue reading »
Posted by Direct Care Alliance on April 22nd, 2014 at 2:18 pm | Comments Off on Talking About #fairpay
Last week Direct Care Alliance, 9to5 and the National Partnership for Women & Families co-hosted a tweet chat about why women still earn much less than men and what we can do to change that.
Equal pay for women is an important issue for direct care workers–and not just because 90% of all direct care workers are women. Like teaching, child care and other forms of “care work,” direct care is a traditionally female profession that pays less than it should because it has been pigeonholed–and devalued–as “women’s work.” And even within the profession, female direct care workers earn less than male workers on average.
Posted by Direct Care Alliance on April 22nd, 2014 at 11:54 am | Comments Off on Direct Care Workers in the News
DCA’s Jessica Brill Ortiz will be one of the participants at a May 8 Capitol Hill briefing on long-term care hosted by OWL – the Voice of Midlife and Older Women. Jessica will explain the importance of direct care workers and the direct care workforce issues that must be addressed in order to ensure quality long-term care services and supports for all who need them.
Posted by Carla Washington on April 21st, 2014 at 4:58 pm | Comments Off on Greater Houston DCA Members Take Time to Recharge
“You touch with your heart long before you touch with your hand,” said one of the almost 200 participants attending the Care for Elders 17th Annual Direct Care Workers Conference in Houston, Texas, earlier this month.
Direct care workers came together to recharge, reconnect and remember why the care and services they provide to the elderly and people with disabilities is vital work, provided not only in Houston but by more than 300,000 direct care workers across the state. Members of Greater Houston Direct Care Alliance (GHDCA) start planning early to ensure they’re available to attend the annual conference, because GHDCA’s members recognize the importance of taking care of themselves so they can provide quality care, services and support to their consumers. Continue reading »
Posted by Direct Care Alliance on April 17th, 2014 at 11:21 am | Comments Off on Helping Obamacare Work for Direct Care Workers
DCA’s Get Direct Care Workers Covered initiative has been helping direct care workers and other low-income workers in New York state get affordable health coverage through the Affordable Care Act (aka Obamacare). Hadas Thier, the Outreach & Enrollment Coordinator for the initiative, recently answered questions from DCA’s Elise Nakhnikian about how the new law is helping direct care workers–and what could be done to make it work even better.
Hadas Thier (R) doing outreach
How were you able to help direct care workers with health insurance enrollment?
Over the last six months, we’ve reached out to hundreds of direct care workers in New York with information and assistance. It’s been really important to have an aggressive outreach campaign because so many people do not know what the Affordable Care Act is, how its marketplace works, and how it applies to them. This is doubly the case with many direct care workers, who may not have access to information through the internet, who may experience language barriers, and who often are isolated at their jobs if they work in individual homes.
Most of the direct care workers I spoke to had heard of “Obamacare” and wanted desperately to have health insurance, but did not know how to go about doing so. Across the board, workers were grateful to have clear information about what coverage options might be available to them and their families.Continue reading »
Posted by Direct Care Alliance on April 7th, 2014 at 12:23 pm | Comments Off on Getting the Care I Need So I Can Provide Care
Valrie Broughton is a home health aide living in New York City. She started working in home care in 2000 in her native Jamaica. After getting health insurance with the help of our Get Direct Care Workers Covered initiative, she shared her story with DCA’s Elise Nakhnikian.
I started working in home care because of my grandmother. When she was ill, no one was there to really take care of her. I couldn’t take care of her properly myself because I had to take care of my kids and work. After she passed away, I decided to become an LPN in my country, Jamaica, so I could help other people in need.
I started working in home care in 2000. I only stopped for a few months when I came to this country last April and could not get work for a while. I love this work. I enjoy being around older people, talking to them, taking care of their needs, giving them hope.
Since I came to New York, I’ve been living with my son. It’s been hard on him because he has to pay back his student loan and support himself, and now he has to support me too. But last month, I found a home care agency that trained me for my U.S. home health aide certification. I passed the test this week, so they just hired me.
I went without any health care for many months after moving here because I couldn’t find anyone who would cover me if I wasn’t working. Continue reading »
Posted by Peg Ankney on April 6th, 2014 at 11:04 pm | Comments Off on Speaking Up for the Profession I Love
About a month ago, DCA’s Jessica Brill Ortiz invited me to attend a March 25 advocacy day in Washington DC. The day was organized by Caring Across Generations, a movement of family members, workers, and others advocating for a system of quality, dignified care. I did some work with Caring Across last year through DCA, which is a member of their leadership team. I was impressed by their ethics and the work they are doing to improve our long-term care system, for both consumers and workers.
I wanted to visit the Capitol because of what I have already been experiencing in my state of Pennsylvania–and I am definitely not alone!
I’ve been a direct care worker for almost 40 years, 25 of them in home care. During the past 10 years I have witnessed a critical depletion in my workforce as demand grows. Because our senior population is living longer, there’s been a huge increase in the need for direct care workers who are passionate as well as compassionate, but too many of the trainees I see coming into the field have no heart for the profession. Instead, they see it only as something to pay the bills, or a stepping stone to something “better,” like a career as a nurse. Continue reading »