Archive for ‘Maine’

Mourning & Celebrating a Direct Care Champion: Our Memories of Joyce Gagnon

Posted by on June 28th, 2010 at 12:21 pm | 5 Comments »

It is with a sad heart that we write these words about Joyce Gagnon, a founder of the Maine Personal Assistance Services Association and one of the most tireless and committed direct care leaders we’ve ever known. Joyce passed away on June 14, 2010, after a long bout with cancer.

Joyce was a strong and tenacious advocate for direct care workers in Maine. She worked tirelessly building the Maine Personal Assistance Services Association (PASA), Maine’s association for direct care workers of all kinds. Joyce worked on PASA’s annual conventions, lobbying at the State House, PASA’s fundraising and membership recruitment. Her hard work and sacrifice made it possible for DCA to develop a powerful model for state-based worker associations and worker-led advocacy.

Just this past year, Joyce was an active member of the Direct Care Worker Taskforce, a group set up through Maine’s Department of Health and Human Services to address many of the problems the workforce faces.

Joyce also had and hand in crafting legislation, twice, trying to bring health insurance to Maine’s direct care workers. She met and talked with many leaders in the Maine Legislature about what it is like to be a caregiver, helping someone maintain their independence in their home, and not have health coverage themselves through their work. Continue reading »

Maine’s Campaign for Better Care

Posted by on May 13th, 2010 at 9:04 am | 1 Comment »

Roy Gedat

Maine’s state-based Campaign for Better Care kicked off last week in Augusta with the DCA-Maine Chapter as one of its partners. Maine is one of six states sponsoring a campaign focused on more effectively involving consumers in treatment and care choices.

The multi-year initiative focuses on improving health care quality, coordination and communication for vulnerable older patients and those with multiple health problems. The nation-wide effort is lead in Maine by Consumers for Affordable Health Care along with partners including the American Heart Association- Founders Affiliate, City of Portland Minority Health Program, Direct Care Alliance- Maine Chapter, Eastern Area Agency on Aging , Law Office of Alice E. Knapp, Maine Council of Churches, Maine Council of Senior Citizens – Alliance for Retired Americans, Maine Equal Justice Partners, Maine Parent Federation, Maine People’s Resource Center and Maine Women’s Lobby. Continue reading »

Impacting Your State’s System: My work in Maine

Posted by on March 4th, 2010 at 3:07 pm | 2 Comments »

For the complete LEAN Report, visit http://www.maine.gov/dhhs/reports/ltc-services-adults.shtml and see the last item under Direct Care Workers Taskforce Materials.

Helen Hanson

I have been working with friends and allies across the state to push the Department of Health and Human Services to present the LEAN Report.  After meeting with Senator Mitchell’s office and several others, it finally happened.

On February 24, Diana Scully, the Director of the Office of Elder Services, presented the report. She took the committee through the process we went through as part of the Lean Team and described the many issues workers face on a daily basis. We had reached consensus that the system’s seven programs should be consolidated into just three, and Ms. Scully outlined the changes that would need to take place.  She also described the recommendation on rebalancing the funding of Maine’s Long-Term Care System so that home and community-based care receives as much funding as nursing home care. Continue reading »

Independent living & disability rights advocate takes up the case of direct care workers

Posted by on February 25th, 2010 at 1:31 pm | No Comments »

On a recent trip to Maine, I sat down with Representative Matthew Peterson of District 92 to discuss his work on behalf of direct care workers in the state.  He has worked in direct care for years, and is currently an Independent Living Specialist at Alpha One, a center for independent living. As an elected official, Matthew is able to advocate for change in direct care and believes it is an essential and valuable workforce. It is inspiring and encouraging  – Matthew has linked his personal passion and commitment to independent living  to advocating the need for a well-trained, respected and well-paid direct care workforce.   Watch the brief interview I was able to record with Matthew, below. 

Imagine if more disability leaders and independent living advocates joined the Direct Care Alliance  and made their voices heard on the issues that matter.  What if, like Matthew, you could advance change in your community, your state, and eventually, across the country?  Continue reading »

Maine Tables Report on Improving Home- and Community-Based Care

Posted by on February 11th, 2010 at 4:45 pm | 3 Comments »

Helen Hanson

Well, our report is complete, but it has not yet been presented to the Legislature.

As you know if you’ve been reading this blog, I am part of a team that was appointed by the state of Maine to recommend ways that the Legislature’s Health and Human Services Committee could streamline long-term care service delivery, address equalities in the services provided, and hopefully gain some cost savings, which can be passed on to workers in the form of livable wages and benefits such as paid time off and health care coverage. We finished our work in early January, and the report was supposed to be released later that month.

But I just learned that the Department of Health and Human Services (DHHS) has put it on the back burner instead. Continue reading »

Maine Makes Progress toward Improving Home Care Delivery

Posted by on January 15th, 2010 at 12:12 pm | No Comments »

A planning session with (L to R) Vicki Purgavie of Home Care & Hospice Alliance, Diana Scully and Doreen McDaniel from DHHS, me, Leo Delicata of Legal Services for the Elderly, and Louise Olsen from the University of Southern Maine, Muskie School

As I explained in an earlier blog post, Maine is putting four pieces of legislation that would affect the home- and community-based part of Maine’s long-term care system — including its direct care workers – through a LEAN process. The aim of the process is to make service delivery more efficient, address inequalities in the services provided, and hopefully gain some cost savings, which can be passed on to workers in the form of livable wages and benefits such as paid time off and health care coverage. We’ve made a lot of progress toward that goal in the last few weeks.

Two direct care workers, Julie Moulton and I, were appointed to the core team that will lead the process of coming up with a plan for a streamlined system. Another direct care worker, Cathy Bouchard, became an alternate, stepping up when Julie was unable to stay on the team. I am also part of a Direct Care Workers’ Task Force that was put together to recommend changes for the issues directly affecting home care workers. This is the first time workers have been involved at this high a level of working on system change in Maine. Continue reading »

A New CNA’s Hopes for Her Classmates

Posted by on December 30th, 2009 at 9:47 pm | 5 Comments »

Helen Hanson (L) at her graduation with instructor Ida Hall

I gave this speech on December 21 to the other students in my CNA certification class. After years as a home care worker, I got my CNA certification so I’d be eligible for a wider range of direct care jobs. Our instructor asked the group to pick someone to make a speech when we graduated. The class nominated me, and I figured it would help with my public speaking skills. But speaking in front of a group is getting better for me, I must say. I wasn’t at all nervous – it actually felt good!

I want to thank the Veteran’s Administration-Togus and Augusta Adult Education for making this CNA course available. It was a grueling course of 200 hours – 50 hours more than the current state requirement. I’m grateful for the opportunity and challenge this course offered.

I want to thank Lisa Theriault and Ida Hall, our instructors, for their patience, knowledge, and expertise in the field of nursing that they have imparted upon us. Personally, I enjoyed Ida’s “old school” teaching methods and her high expectations of us. One of my high school teachers was the same way, and she’s the one that inspired me to push myself beyond my comfort zones and to do the best that I can with the knowledge I have. She’s the teacher I remember from my high school years – twenty-five-some-odd years ago.

With our graduation this evening, we now have the skills and knowledge to work as CNAs. Through this work, we all have the opportunity to make a difference in the lives of those in our care. Continue reading »

What I Learned in a Nursing Home: It’s All About Relationships

Posted by on November 11th, 2009 at 3:01 pm | 1 Comment »
Alice Li during her stay in a nursing home

Alice Li during her stay in a nursing home

I’m a third-year medical student at Mount Sinai School of Medicine. Last summer, I spent two weeks in a nursing home in Maine as part of the Learning by Living Project, where medical students are admitted to nursing homes as residents to gain insight into how it feels to be an elder in a nursing home. The observations that follow are taken from the journal I kept while I was there.

It is really amazing how much the CNAs know about the people they take care of. They are what make the medical system tick. They bring up names and stories and what the residents did that endeared them to the CNAs. They know what each resident’s preferences are. Those they really love become family, and when the resident dies, they shed tears. That is the kind of relationship that I hope I will have one day with my patients.

Yes, sometimes they are spit upon, peed upon, hated upon, but other times they are loved, appreciated, and always needed. They all have favorites. Some even have favorite floors – for many, the dementia floor, it seems. Continue reading »

What Motivates – and Demotivates – Direct Care Workers?

Posted by on October 8th, 2009 at 2:03 pm | No Comments »

gerontologist cover October 2009For an academic but accessible take on what motivates – or demotivates – direct care workers, check out this month’s issue of The Gerontologist. The main focus is a section titled Direct Care Worker Job Satisfaction and Retention, which includes four reports on the factors that make direct care workers like or dislike their jobs.

“Intrinsic Job Satisfaction, Overall Satisfaction, and Intention to Leave the Job Among Nursing Assistants in Nursing Homes” reports that nursing assistants who feel supported by their supervisors and satisfied with their pay are likeliest to be satisfied with their jobs. “Other job characteristics, such as the workload structuring the time to assist residents with ADLs, also seem important aspect of NAs’ work experience [that are] amenable to change,” note authors Frederic H. Decker and colleagues.

In “Nursing Home Work Practices and Nursing Assistants’ Job Satisfaction,” Christine E. Bishop and colleagues analyze data from the recently released 2004 National Nursing Assistant Survey, finding that workers are more satisfied when they earn higher wages, get paid personal leave and sick days, and have enough time to complete their work (that last point is also associated with higher staffing levels). Also associated with higher satisfaction are feeling respected and valued by employers, having good relationships with supervisors, having challenging work, not being subjected to mandatory overtime, and working in a home where food is not delivered to residents on trays. Continue reading »

Voices Institute Welcomes Another Remarkable Class

Posted by on September 10th, 2009 at 5:06 pm | 8 Comments »
Angel Saylor (R) with home care aide Kelvin Jefferson at a DCA focus group

Angel Saylor (R) with home care aide Kelvin Jefferson at a DCA focus group

The Direct Care Alliance’s signature program, the Voices Institute, is about to hold its second National Leadership Program. The week-long retreat is an intensive learning journey, and this year’s class is another remarkable group, which will surely join the pioneers from the VI inaugural class to leave its mark on the direct care worker movement. We are returning to the DeKoven Center, where the roots that were planted at the first Voices Institute National Leadership Program will again thrive.

This year, we are welcoming men and women who care for people of all ages in a variety of settings, including nursing homes, hospice, group homes, day programs, assisted living, and home- and community-based programs. Consistent with the DCA’s objectives to build a broadly inclusive movement of empowered direct care workers, the class of 2009 represents a wide spectrum of direct care workers. Continue reading »

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